Monday, April 13, 2009

FYI : Marfan Syndrome On Discovery:

Tune in to Discovey Health on Monday, April 13, for the program Mystery Diagnosis, which will feature a segment on Marfan syndrome. This is an in-depth piece that will highlight the difficult Marfan diagnosis journey of NMF member Michael Murray and will leave viewers with important information about Marfan syndrome - what it is, how it is diagnosed and how it is treated.

The NMF is grateful to Discovery Health for their interest and to the members of the Marfan community who were involved in the filming, including Michael Murray, his mom, NMF Board member Karen Murray, their family members and friends; the Kravitz family (especially Jeremy); Dr. Bruce Gelb and Dr Zvi Maron.

Please check your local listings for the time and channel Discovery Health airs Mystery Diagnosis in your area. It is also available on satellite tv.


The above is a copy of an e-mail, sent to me, from The Marfan Foundation. As some of you may know, I was diagnosed with Marfan Syndrome when I was 15 years old. If you would like to know more about this genetic disorder, its diagnosis and treatment, you can tune into Discovery Health tonight.



Christine said...

Very interesting. Looking forward to it. And a little embarrased to admit that I have not hear of Marfan syndrome .... I will need to google this today.

Shania said...

Hi Will!
I hope everything is well with you. hoping you have a great weekend!

I have seen mystery diagnosis and loved it. I would have to google Marfan syndrome as well. thanks for sharing. BTW I am just a bit confused on what I have to do in regards of the "friends and favorites award". Do I have to pick other bloggers? and how many?

W. Murray said...

It was odd when i saw this. My name is w. murray and i am 25. I have been tall my entire life and have the slight indent in my chest. i have always played sports and have never really felt like i have had any issues. just kind of abnormal to see a show and have so many similarities with someone like this.